We have mentioned a couple of times how not much happens on the weekends around here. For once though it seems that this weekend will be a little different due to an interesting fork in the road we seem to have come to.
After countless tests, bloods and a handful of trial treatments finally today a test result came back with some kind of sign as to what might be wrong with jovie. A detailed test of her ears and brain stem reactions has revealed that there is a slight delay in the respiratory part of her brain stem. Logic may dictate that this would be an obvious answer to our little conundrum, but apparently its not quite that simple.
If indeed it is this delay in the brain stem that is the problem, the docs say that a simple kick up the arse will sort the breathing problems. The slight kick being a hefty dose of caffeine. Now the observant readers of this blog will point out that jovie has been on caffeine before (in actual fact she has been pretty much from day dot) and that it would be rather odd for that to suddenly become the answer to our prayers, when its seemingly done bigger all before. It was hardly a surprise to us then, that now 12 hours later, we have seen no sign of improvement in her breathing.
It seems if it looks like a horse, smells like a horse and sounds like a horse, its probably a cabbage.
The coffee trial will continue until tomorrow when if improvement still isn't seen, that road will be closed for now and the other route will be taken.
That other route again focuses on drugs for the rare genetic disorder that they still feel jovie may have, and which could in theory be causing exhaustion specific enough to affect just the breathing part of the brain stem. This fancy treatment apparently costs £80 per single pill.
If you were ever one to wander where the money you pay the nhs goes, well now you know.
For us, all this just raises more questions, more confusion and to be honest more upset. The diagnosis sounded so promising earlier today that the caffeine may be the answer, yet now if it isn't (which looks certain) we are faced with yet another horrible wait to see if another random drug has the desired effect, and then what if it doesn't?
As for the little lady herself, she continues to sleep through most of it. Blissfully unaware of all the fuss and bother going on around her. She had another batch of visitors today, including her great granny, thank you again to everyone who has visited and sent messages over the last 23 days.
By tomorrow we will have confirmation if the caffeine ain't working, and jovie will be on to the next treatment.
Some definitive answers sure would be nice.
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