Jovie Wyse was born on Wednesday 4th May with a rare condition called Congenital Central Hypoventilation Syndrome, or “Ondine Curse” as it is often called. The condition affects the central nervous system, essentially stopping Jovie from breathing when she sleeps. It is an extremely rare and very dangerous disease, especially in newborn babies and as a result of this Jovie had to undergo a tracheotomy and requires 24 hour ventilation.
After spending her first two weeks in Worcestershire Royal Hospital, Jovie was moved to Birmingham Children’s Hospital. With Jovie’s dad working two jobs in Worcester and her mum unable to drive this presented an almost impossible scenario for the new parents. Thankfully they were informed about the Ronald McDonald House Charity which provides an apartment complex attached to the Children’s hospital Birmingham, open to parents of babies being treated in the hospital. Many of you may have given money in some form to this great charity before, albeit unbeknown to you. Those penny jars on the counter of McDonalds? They, along with masses of charity work from the individual houses bring in the money that builds these apartments and maintains them all year round.
As well as providing 60 bedrooms, the Birmingham House offers families the opportunity to cook together, to eat together and share their experiences of the day. For families coming to the Children’s Hospital for day care, there is also a purpose built lounge, kitchen and play area on the ground floor for their use throughout the day. The House charges the parents nothing at all and is entirely funded by charity work, fundraising and help from volunteers and other kind donations
Without the generosity of the Ronald McDonald House, which receives no funding support from the NHS of government, Jovie’s mum and dad would have been stranded and forced to either leave Jovie alone in hospital, or spend a fortune living out of hotels. Now four months down the line, it a God send that neither of those things had to happen.
Soon, Jovie will be in a stable enough position to get out of the hospital and come home for the very first time. At which point the Wyse family will be returning to Worcester. As a token of their gratitude to the Ronald McDonald House Charity they are hoping to raise as much money as possible to present to the House when they leave. The key way in which they plan to do this is a Charity Auction, which will take place at the Marwood in Worcester on a date yet to be confirmed. What we require are donations to be auctioned off at this event, with the proceeds going towards the Ronald McDonald House in Birmingham. We hope to raise as much money as possible so welcome items of any price range, size or type. Anything from meal vouchers to brand new cars! Whatever you can afford to donate would be very gratefully received.
In addition to the actual auction event itself, a selection of the items on offer will be published in the Worcester News, (Worcestershire’s leading daily newspaper with over 14,000 readers per day) with the facility for members of the public to text in bids for their own chance to win the items (and to ensure we get as much money as possible for them!). Your business card will also be on display at the Marwood during the auction.
If there is anything at all you could donate to be auctioned, please contact me in one of the following ways;
Tweet;
@sunners14
@sunners14
Post;11 Peterborough Close,
Ronkswood,
Worcester
WR5 1PW
Ronkswood,
Worcester
WR5 1PW
Phone;
Chris on 07825 788729 / Kelly on 075981 83595 / Lorna on 078918 68705
Anything you can donate would really help us a lot and hopefully raise loads of money to help this brilliant charity that help so many families in such difficult times. There are a lot of great causes out there, yet this is one that really doesn’t get the coverage it deserves. For more information on Jovie’s condition, please visit www.cchsnetwork.org or the Ronald McDonald House Charity, here http://www.rmhc.org.uk/
To follow Jovie’s individual progress take a look at her blog! www.joviewyse.blogspot.com
Thank you from Jovie, and all the Wyse family and friends.
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