Results from recent tests have shown that jovies brain is successfully sending messages to her nerves. The nerves are passing these commands to the muscles and her muscles are performing the actions. Simples. What this means for us is there isn't a fundamental problem with her system, but a syndrome/disease/disorder that is causing the gaps in her breathing.
As with everything it seems this is good and bad news. Obviously its good because everything works, but bad because the docs have little idea what the cause is. Today they ruled out any problems in her ears, eyes or throat and paved the way for the ventilation system which is supporting her system to be switched off.
Great news in some respects (if this were a Disney movie jovie would wake up breathing for herself and we'd all live happily ever after). But then we've been here before (twice in Worcester they took her off, twice they had to put her back on...)
So countdown begins. Hopefully by tomorrow morning they will be ready to remove the tubes and we can see how long jovie lasts breathing unaided. We want to believe she can just defy the odds and do it by herself. More realistically, we hope that however long she manages (13 hours the first time, a week ago Sunday in Worcester is the best so far) the docs can get an idea of what is causing the drops and how her current medication (caffeine and something I can't spell) are benefiting her.
As for us, we've settled in as best we can in Birmingham. We are trying to remain positive and trying not think too much about the horrible reality of having to go back to work next week. We even managed a couple of laughs today at a doctor probably not called Wolfgang and Lorna taking an interest in Islamic extremism.
Really tho we just want our little girl home so we can have our own happy ending.
Fuck you Walt Disney. We want one too.
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