All fun and games up in Birmingham this week as we are forced to spend two nights locked in the hospital after the riots hit Birmingham. On one of the nights news swept across Facebook and Twitter that the hospital was under attack, one even claimed it was on fire! As she so often does, jovie slept through the lot. Too young that she is to be sent out to get us a new tv...
Elsewhere we have had good fun watching England destroy India in the cricket together, while the much welcome return of the premier league highlights just how long we've been here.
Jovie herself continues to shine, her weight is good and she tolerates her ventilation perfectly. She now has two different circuits, one connected to a humidifier the other a dry circuit for her to get out and about on. She continues to enjoy her spells in the pushchair and sitting in her car seat too. Her awareness and interaction is brilliant, not sure where she gets her brains from but she's going to be a smart egg that's for sure.
Much to our absolute delight, all being well tomorrow she will get to experience the car seat for real for the very first time as a day trip to Worcester is planned! Another huge milestone on the road to getting home for good.
A road we are very much nearer an end too. Once we have sorted a home to go back to that is. Our training is nearly all done, and even Kelly has began hers. Once finished, and once we secure a house, all of which should be weeks rather than months away we will be good to go! Amazing and frightening in near equal measure.
Personally things haven't been better, with jovie doing so well I was able to make a flying visit over to gay Paris for the bros wedding. Great fun and amazing to see all the family. Was gutted not to have the two girls with me of course but really hoping everyone will get to meet her soon. Lorn is off on her own jaunty very soon with her own trip abroad for the big gay wedding of the year, giving me some quality time with madame! Its weddings galore over the next month and with progress going as well as it is we are genuinely hopeful jovie may be out in time to enjoy some of them too.
As for her condition, no further developments or indication about how she may tolerate breathing independent from the ventilator during the day. Still a little early to tell yet but fingers are permanently crossed and some early indications are quietly promising. Weirdly there is a story in 'love it' magazine this week about a little guy with the same condition as jovie. Disappointingly short and simply written article, but a nice reminder that we are not alone...
Lots to look ahead to over the next little while. Still making the most of the simple little things along the way, bathing, cuddles little smiles and simply being the amazing little character she is. Early plans are in place for a party of all parties once we are finally out of here, to include a charity auction so anyone with any suggestions or items they could put up to be auctioned would be greatly appreciated. Obviously a date will be set once we have a discharge date and all and sundry will be invited!
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