30. Jovies age in days as of today.
19. Days jovie has spent in brum.
5. Days til Lornas due date!
35. Days early jovie was born.
3. Different types of drugs jovie has been given for a rare muscular disorder it now looks certain she DOESN'T have.
17. ml per hour of infantrini milk jovie is currently being fed.
6'11. Weight at birth.
6'8. Current weight.
14. Jovies current bed number and also my lucky number. So much so I stopped them moving her to a bigger area as part of her new long term care plan.
15. Negative tests jovie has had ranging from viruses to genetic disorders.
19. Different family and friends visitors who have met our little lady.
9. Feeding tubes jovie has managed to pull out when the nurses have not been looking!.
5. Different kinds of ventilator jovie has been on.
2. Hospitals.
60. Rooms at the Ronald Mcdonald hotel/apartments. All of which are totally paid for by the charity through those penny jars in maccies and the generous work of volunteers and fundraisers.
10. £ it costs per day to park at brum hospital without parking pass, it is only tenner for the whole week with one.
16. Nurses on new long term care team, designed to help us get more involved with her day to day care and keep more continuity with her nurses. It also allows us freedom to decorate her bed space and have regular meetings with all her docs.
3. Nurses not in team who have liked the little madame so volunteered to still look after her.
250. Members of staff in the brum intensive unit alone.
130. £ spent during initial week living out of Worcester hospital.
65+. Miles I have to drive each day to get to work and back through the shit hole that is Birmingham.
22. Average number of hours jovie sleeps per day.
6. Weeks it will take before Jovies dna results are back and we may have a clear idea of what is wrong with her. We found out yesterday the first tests have only just been sent after being 'lost' on route to labs in Bristol.
And finally,
2. The number of ladies in my life I love with all my heart and pray each day they are safe and healthy.
1, Native of Kinshasa, Zaire, who thinks baby Jovie and her parents are extremely brave and wishes them all the best:)
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