Well, the moment we waited so long for finally came last Monday, as we were finally discharged from Birmingham Children's Hospital. Despite a number of minor and one or two pretty major annoyances a massive thank you goes out to everyone at BCH who helped look after Jovie, and us while we were there. We know that with Jovie's condition, when she inevitably picks up bugs and colds we will find our way back there, however in the nicest possible way, I hope its a loooong time before we need to see the inside of that hospital again!
Being home has been amazing this first two weeks. The house is coming along, although still needs a lot of work and bits and pieces doing, but it's home. Jovie seems happier and more relaxed, and I think we are too. Problems have been near non-existent, with Jovie pulling her feeding tube out of her stomach the only moment of minor emergency. All was sorted easily enough and she now has a 'button' rather than a full tube attached from her stomach, which is one less tube to worry about anyway!
Lot's of visitors have been in to see her, both family & friends and doctors, care workers & the like. While I have started my three days working from home with decent success this week, we've both had the fun of getting used to early mornings and the day to day stuff of looking after any kind of baby, let alone one as special as Jovie. Lot's of press coverage came our way this last week as well, with our ugly mugs along with some cracking snaps of Jovie going in the Sun, Metro, Star, Mail online and a host of foreign websites from Fox News to Vietnamese health pages! I also had a chance to promote the charity do on BBC Hereford & Worcester which was great.
Most refreshing of all since being home is our worries have well and truly shifted from getting Jovie home, to normal things like getting the house sorted, and the small matter of Christmas - Jovie's first and the first I have properly looked forward to since 1994... literally can't wait to wake her up most mornings, but something tells me December 25th might be particuarly nice!
I will keep the updates on Jovie's progress going, lot's still to find about her and loads of hurdles to take on. A massive thank you to everyone who helped us get her home, and to all who have kept up our progress, the comments we have had have been humbling.
One particuarly big thank you must also go to the Ronald McDonald House in Birmingaham, where we stayed throughout Jovie's stay in hospital. Our fundraising event for them last Sunday was superb, with lot's of money raised for a great cause. Thanks again to everyone who came and especially to those who bid and bought raffle tickets. Cheers all.
As I don't do these on a computer much (I usually use my phone) here are some snaps of the little lady for those not on facebook...